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What's the deal with yoga and hypermobility?

I wanted to address a question today that keeps coming up on various hypermobility and EDS forums that I frequent. It comes up so often in fact that I feel like I have to write this all up in one place, to save me 1000s of key strokes of individual responses and distil some of my opinions and thought processes on the matter.

It always goes like this. Someone asks a question like "I've just been diagnosed with hypermobility, I've been told I can't do yoga anymore..."

The responses are always a mixture of "yes, my doctor/physio told me yoga was the worst thing I could do for my hypermobility" and "I do yoga and it's been the best thing for my hypermobility".

So what gives?

Well, I'm firmly in the "yoga is useful" camp, and I have to disclose that. I'm a yoga practitioner of around 20 years and a perinatal yoga teacher, as well as a personal trainer and bendy person.

While I have the deepest respect for the medical professio…

I'm an intelligent grown-up, so why can't I eat like one?

Nutrition is complicated.
The rules change all the time. One minute we are told a food is bad, the next it's good. It's like scientists can't make their minds up!

Fat does't make you fat. Sugar is toxic. Undereating puts you in starvation mode. But you can "hack" your metabolism with this one weird trick.....

Of course all of this is false, or at least such a gross reduction of the truth that it is open to extreme misinterpretation. Put it out in plain sight and it becomes very clear that it doesn't hold water. So why are we believing this? Why are people telling us this, and most importantly; why as educated, intelligent adults who are perfectly capable of identifying a healthy plate of food, are we still struggling to consistently eat well?

The rules of healthy eating.
Healthy eating is not at all complicated. It's actually so obscenely simple that when I spell it out you're going to go "well tell me something I didn't know" and r…

But how can you be an athlete when you are sick?

Training through chronic illness - living life on the edge.
I'm living a double life.

My superhero persona goes to the gym and lifts enormous weights. She's vital and has her life together. Endless to-do lists in a bullet journal, juggling work and kids and being an athlete and performer with theatrical effortlessness.

Then there's the secret side people don't see, where I lie on the sofa in my flare day leggings and fleece, clutching a cup of tea for the slight relief the warmth affords my stiff, clawed hands.

I know I'm not the only one. I know a lot of athletes living with chronic illness. Outwardly fitter and busier than the average person, inwardly wracked with pain and fatigue.

There are two ways people tend to interpret this. Either we are not as sick as we claim, or we are stupidly putting our health at risk doing sport that seems counter-intuitive to our well being. The reality is a lot more complicated. I wanted to formulate a decent answer to "why …

Training Ehlers Danlos Athletes - a primer for the Fitpro.

When you have a rare health condition, it's pretty exciting when you encounter someone who knows about it. Even more so when you encounter people who are interested in it and more importantly, understanding how to bridge the gap and work with it.

This is why I am really happy to be seeing more and more fitness professionals asking "I have a client with Ehlers Danlos Syndrome, what do I need to know?"

As a fitpro, and athlete living with Ehlers Danlos Syndrome I am always happy to chat to trainers looking to broaden their understanding, and as I am often answering the same questions, I thought it would be good to do a write up.


Quick disclaimer before we start - I'm not a medic, and this is not for medics. I'm going to provide you with as many references as I can, but please seek specific medical input from your/your client's health care professionals. And with that we get to our first point.

Scope of practice.
Quick, check your job title. Are you a personal tr…

Training with Fibromyalgia - a primer for Fitness Professionals

Fitness and Fibromyalgia
The second of my posts about training clients with chronic illness (the first on EDS is here)

Learning how to achieve fitness in a chronically ill body was first my way of life, and later, my profession; as I train or programme for a number of Personal Training clients. I have EDS and Fibromyalgia (which commonly presents alongside EDS).

While the physiology and mechanisms behind EDS are relatively well understood, at least in terms of recognising the roles collagen plays in our bodies and the effects of an anomaly, fibromyalgia is a bit of a tricky one. The diagnosis, causes and management of fibromyalgia are not very well understood, and while progress is being made in terms of recognising physiological markers etc, we are still very much in the dark.

One thing that is generally agreed on however, is that exercise is good therapy for fibromyalgia, and that's where we come in.


Scope of practice
Here we go again...

Fitness professionals are there to help …